I am the mother of a very special little girl. Seven years on and we still have no diagnosis and little understanding of why she is as she is. This is just a place to update on her and talk about life as we know it. Remember, normal is a setting on the dryer, it does not apply to children!
Thursday, November 13, 2008
No more waiting !
Naomi was accepted into the NIH undiagnosed diseases program! Now we wait for someone to contact us and set up our trip out to Bethesda. A big answer to prayer!
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