I am the mother of a very special little girl. Seven years on and we still have no diagnosis and little understanding of why she is as she is. This is just a place to update on her and talk about life as we know it. Remember, normal is a setting on the dryer, it does not apply to children!
Naomi was accepted into the NIH undiagnosed diseases program! Now we wait for someone to contact us and set up our trip out to Bethesda. A big answer to prayer!
