So today we finally get this from Dr. D.
Naomi's final blood test result, the Prometheus IBD Serology 7, has just been received at my office and the results are negative. That is, she does not have subclinical Crohn's disease or ulcerative colitis that could cause recurring pancreatitis. This completes an exhaustive work-up for all known causes of pancreatitis and hepatitis. My best guess is that Naomi has a previously undescribed genetic syndrome leading to both chronic pancreatitis and hepatitis. At this point there is no additional treatment for Naomi.
Guess now we just do nothing? What do you do with information like this? I am at a loss.
2 comments:
oh hun.. {{{{{Steph, Mike, and Naomi}}}}}
so now I guess you are going to UCSF? There has got to be someone somewhere with answers or at least ideas!!! Hang in there girl.. we are praying for you and the family.
Praying for the brilliant doctor who has all the answers to cross your path!!! He/She has to be out there somewhere! God, please provide some answers for my dear friend Steph. And some rest. And some chocolate. Amen.
Love you!! - Annie
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