I am the mother of a very special little girl. Seven years on and we still have no diagnosis and little understanding of why she is as she is. This is just a place to update on her and talk about life as we know it. Remember, normal is a setting on the dryer, it does not apply to children!
Tuesday, February 5, 2008
Back to square one
I've been putting this off since I really have nothing new to report. Every new test comes back normal and yet she is 4.5 years old and weights a whopping 28.6 lbs. I'm stuffing her with calories and there is just no weight gain. We add enzymes and 2 months later I don't think she's gained a thing. 'Course it doesn't help that she's been sick again, a week and a half and counting. This cold coupled with a rise in her Lipase has her sleeping a ton and in some pain. I just wish we could find out what is wrong and give her some relief. The talk now is of a liver biopsy since it is again enlarged, but who wants to do that to such a small kiddo. I'm just afraid we'll go through all that and it will come back normal. I'm beginning to hate that word.
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1 comment:
Yes, I don't blame you for hating that word! Wish I could wave a magic wand that would reveal answers...
Love and prayers, Angela
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