Bummed

So my excitement at having some sort of diagnosis for Naomi and her liver has been short lived. All the tests done to see what type of autoimmune hepatitis have come back with no markers for that particular disease. So we are left with no clue as to why her liver is the way it is. And it doesn't look like they are going to leave the autoimmune hepatitis label on it either. I talked to one of her doctors who read part of the report where the pathologist at UCSF says "never seen anything like this." Great is about all I can say. We are waiting for a couple more test results to see if she has inflammatory bowel disease but I'm not holding my breath. The question now is if it's time to head down to UCSF and have many fresh pairs of eyes look at her. So much for a diagnosis and potential treatment.